Patients & Families

We are committed to delivering important new medicines to treat life-threatening, rare central nervous system (CNS) disorders.

"Studies have shown that approximately one third of epilepsy patients have epilepsy that fails to respond to treatment. Many of these patients have what is called orphan genetic epilepsies which tend to be severe and begin in early childhood. The Foundation wants the door to be open for research because our population who fail to respond to current treatments need new options. Our vision is a world without epilepsy and seizures.”
- Susan Welby, Director of Programs, Epilepsy Foundation of Mass, RI, NH & ME.

Clinical Trials

We are working hard to develop new treatments for patients and their families.

When it comes to living with central nervous system (CNS) disorders, we have one important goal: to make life better for our patients and their families. Our team is working every day to discover, develop and deliver important new medicines to treat these life-threatening, rare diseases.

Which trial is right for you and your family?


We are fearless in our pursuits. We know you are, too.

When it comes to facing life-threatening central nervous system (CNS) disorders, you’re not alone. We encourage you to visit the websites of the following advocacy organizations, which are also fearless in their pursuits to find better treatments for patients living with CNS disorders.